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Banned
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Money donated will go towards costs associated with Shans illness for travel, expenses and to get Shan to the US for the best possible care. Hopes are to raise enough to get Shan back to Texas Childrens Hospital where there is an expert Histiocytosis Department headed by Dr. Kenneth Mc Clain offering advanced treatments, trials and information. She will also need to travel to Boston MA on a regular basis if Shan is a viable candidate for a current trial which has been running since 2014 with 81% of patients already in full remission. Histiocytosis X comes in many forms and Shan is in a rarer group having multi system with Skin (multiple locations) ear, pituitary and hypothalmus involvement causing many hormone issues including Diabetes insipidus (currently treated with desmopressin) and a need for growth hormone injections, cortisol and hormone replacement (following chemo) Shan is currently 6 months into her current chemo regime of 5 days cytarabine every 21 days for 12 months and is not responsive so will need further treatment. While this trust focuses primarily on funds needed for Shan we hope that along her journey through treatment and recovery that we can make people more aware and that we can help others faced with a similar diagnosis.
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Link to donate:
https://www.idonate.ie/2018_team-shan-histio-warrior-trust.html#tabs-0
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